The Foundation of the NLA has established RADAR (the RAre Disease AwaReness campaign) as a national patient outreach program that will provide a plethora of resources and tools for both healthcare professionals and patients about several of the rare lipid disorders including (but not limited to):
• Familial chlyomicronemia syndrome (FCS)
• Lysosomal acid lipase deficiency (LAL-D)
• Heterozygous familial hypercholesterolemia (HeFH)
• Homozygous familial hypercholesterolemia (HoFH)
The resources provided for this campaign are available to help you identify the rare lipid disorders that do exist, to help you better understand treatment opportunities and options, and the need to manage your cardiovascular health. Healthcare professionals can also find resources available that will assist in communicating vital information to patients.
An integral part of this campaign is the FCS cookbook, which includes a multitude of delicious recipe options designed specifically for individuals managing FCS. The site also includes informational tear sheets and links to other valuable websites and resources of information. Please continue to check back regularly as we are growing and adding information continuously the different rare lipid disorders.