WHAT WE DO
Awareness, Education, Advocacy + Equality
The Foundation of the National Lipid Association is a 501(c)(3) organization formed in 2008 to serve as a patient education organization in the field of clinical lipidology. We are focused on providing education, advocacy, and resources to help patients and their families manage and overcome lipid-related health problems that may put them at risk for a heart attack or stroke.
We aim to translate scientific and medical progress into effective evidence-based guidance for optimal patient care.
lipid disorders
Have you been diagnosed with or think you may have a lipid disorder? We can help.
The Need
Why do we work on engaging patients and consumers?
Patients today are encouraged to become part of their healthcare team and to be the leaders in making decisions about their health. Patient Engagement is essential in improving overall population health outcomes. Patient engagement is defined as interventions designed to actively involve patients in their well-being and health. Patient engagement has been shown to improve adherence to treatment plans, increase patient satisfaction, and lower hospital utilization and healthcare costs among patients with atherosclerotic cardiovascular disease (ASCVD). However, patients often don’t feel like they have the information and resources they need to be part of their care team and to make informed decisions.
Are you a healthcare professional or researcher?
These resources may interest you!
Health Screenings for You & Your Family
Did you know that the state of Kentucky has the 9th highest rate of heart disease in the country? According to the Centers for Disease Control and Prevention (CDC), heart disease was the leading cause of death among Kentucky citizens. The Foundation of the NLA works with local health centers to provide complimentary LDL-cholesterol, triglyceride, and glucose/A1c screenings to communities in need. Since the beginning of our screening program in September 2018, 253 people in rural Kentucky communities have received a blood test report and risk counseling. Subscribe today to be alerted if we will be hosting a screening near you!
HEART HEALTH QUIZ: Please Choose One Answer Below
What LDL-cholesterol level is considered to be optimal for heart health?
Today is the start of National Nutrition Month! We partnered with two credentialed dietitians who looked at food choices you can find in Dollar General stores to make a list of heart-healthy and affordable food that you can include in your diet. 👉 http://ow.ly/QKz650DMHFq.
We stand with @livingwithfcs in their efforts to see that the U.S. Food and Drug Administration therapy review process is improved to better reflect the unique needs of the rare and ultra-rare disease communities. ➡️ http://www.learnyourlipids.com/support-for-the-heart-act/
The Foundation supports all patients with rare lipid disorders on Rare Disease Day 2021! Learn more about rare lipid disorders, including Cerebrotendinous xanthomatosis, Familial Chylomicronemia, Lipase Deficiency, Sitosterolemia and more 👉 visit http://www.LearnYourLipids.com.
Aunque su cuerpo necesita algunos triglicéridos, demasiados pueden provocar enfermedades cardíacas, derrames cerebrales o dolor abdominal intenso debido a la irritación del páncreas. Obtenga más información con nuestra nueva infografía descargable aquí http://ow.ly/f6Bf50DJXRq
Un "panel de lípidos" es una medida de la grasa en su sangre. Los niños deben ser evaluados entre los 9 y 11 años. Conozca lo que significan los números en su panel de lípidos visitando nuestro nuevo sitio web haciendo click en "Descargar en Español" 👉 http://ow.ly/3GUK50DH13N.
There are ~29 million Americans with total cholesterol levels over 240 mg/dL, which increases their risk for heart disease. Are you one of them? 👇 Download our FAQ guide with answers to your questions about managing lipids to reduce cardiovascular risk.
Today is National Wear Red Day! ❤️ At the Foundation of the National Lipid Association we support women's heart health. #WearRedDay and #GoRed
Take care of your heart during American Heart Month! ❤️ Remember that heart disease is preventable in some with healthy choices, which include not smoking, maintaining a healthy weight and getting at least 150 minutes of physical activity a week. #hearthealth #stayhealthy
Thank you 🌸 to all who donated, volunteered their time and expertise, and supported our cause in 2020.
Today we celebrate the nation’s IV nurse professionals 👩⚕ who dedicate their lives to providing apheresis patients with the best care. 💉 #IVNurseDay #thankyounurses
“Of all the forms of inequality, injustice in health is the most shocking and inhuman.” #MLKDay
The Foundation of the NLA sends you warm wishes for a bright and prosperous New Year! 🎉🍾 #NewYear #2020
Season's greetings from the Foundation of the NLA! Wishing you and loved ones a wonderful holiday season! ❄️☃️ #seasonsgreetings #happyholidays
On behalf of the patients (current and future) we serve, thank you to all who participated in our virtual auction and supported the Foundation of the NLA this weekend! Over the course of 4 days we beat our goal and raised $14,142 in winning bids and donations.
Have you browsed our auction inventory yet? We are over 60% of the way to our $10,000 fundraising goal. You have until 8:00pm Central TONIGHT to bid on our exclusive items and help us get there!
We are over 40% of the way to our $10,000 year-end fundraising goal! 👏 Have you browsed our auction inventory yet? You have until 8:00pm CST on Sun, Dec 13 to bid on your favorite items! ✅ 100% of the profits will benefit our patient education in 2021. http://www.32auctions.com/FoundationoftheNL
This #GivingTuesday 👐 support our efforts to provide nutrition counseling assistance & health screenings to low-income families suffering from lipid disorders. Make your donation here 👉 http://ow.ly/soR930mKLJK & tag the @foundationofnla in a post letting us know why you give!
We are focused on providing education and resources to help patients and their families manage and overcome lipid-related health problems. 👍 Support the Foundation of NLA this #GivingTuesday to help us reach our year-end fundraising goal of $10,000.
November is American Diabetes Month 🩸 a time to create a sense of urgency around this growing public health crisis. 👉 To learn more about understanding your risk for diabetes and measuring your hemoglobin A1c visit http://ow.ly/V1TF50Cj6AQ. #KnowYourA1c #adm2020 @AmDiabetesAssn
The Foundation of the NLA is excited to announce our first-ever virtual auction on Dec. 10 -13! We have 11 items ranging from an autographed guitar 🎸 to virtual wine tastings up for auction.100% of the profits will support the Foundation! Go to 👉 http://www.32auctions.com/FoundationoftheNLA
November is National Family Caregivers Month, it is a time to celebrate, recognize and honor the contributions of caregivers across the country. 👉 To find more information and resources visit http://ow.ly/UACv50Cj6ow. #caregiversupport #familycaregiver #healthtips
The Foundation of the National Lipid Association celebrates World Diabetes Day 🩸 To learn more about understanding your risk for diabetes and measuring your hemoglobin A1c visit http://ow.ly/l8Rx50CdOLI #diabetesprevention #KnowDiabetesByHeart #KnowYourA1c
We joined our colleagues from @MendedHearts, @ABCardio1 to discuss trends in cardiovascular care in the US. Check out a new article in the @nytimes addressing the need for diverse communities to lead a legacy of fewer lives lost to heart disease. 👉 http://ow.ly/zbKf50Ci5ZS
The Foundation of the National Lipid Association celebrates the National Nurse Practitioner Week, 👩⚕️ recognizing the nurse practitioner (NP) as the health care team member on the front lines around the world. We thank you! Visit http://ow.ly/rpF450C5s3H #NPWeek #thankyounurses
Today is Familial Chylomicronemia Syndrome Awareness Day, dedicated to raising awareness of the challenges associated with this disease. 👉 Visit to download brand-new FCS-friendly recipe cards! #fcsawarenessday #HEARTACT2020 #LivingwithFCS @livingwithfcs
FCS Cookbook : LearnYourLipids
© 2020 Download brand-new recipe cards Low-Fat Cookbook for Patients with FCS The story of this cookbook begins 1...
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It’s World Heart Day ❤️ Did you know that avoiding tobacco use and following a healthy diet and activity lifestyle could help us avoid 80% of premature deaths from heart disease? Visit http://ow.ly/OLcQ50By98q to find a heart-healthy grocery shopping list #worldheartday2020
Today is FH Awareness Day, created to raise awareness of familial hypercholesterolemia worldwide during Cholesterol Education Month. FH is a life-threatening genetic condition that causes premature heart disease. #KnowFH 👉 For more information visit http://ow.ly/mAKZ50By8Kb
Happy Women in Medicine Day! 👩⚕️ Who are the women in medicine who inspire you? Show your support for Women in Medicine by posting a message using #3InspiringWomen and tagging three women in healthcare who inspire you. #WIMMonth #WomenofAMA
Today we sent a letter to @RepRutherfordFL urging him to join us in supporting the Helping Experts Accelerate Rare Treatments (HEART) Act, a proposed bill to strengthen the review of rare disease treatments.
Read about the proposed legislation here:
http://ow.ly/Ao6s50ALKJa
You still have time! Do you have questions about managing your cholesterol and triglycerides to reduce your risk for heart disease? Send them to us @ info@LearnYourLipids.com & get answers from Dr. James Underberg @NYUCVDPrevent tomorrow night 6-7 pm ET. http://ow.ly/LDhe50AFvon
Do you have questions about managing your cholesterol and triglycerides to reduce your risk for heart disease? Send them to us @ info@LearnYourLipids.com & get answers from Dr. James Underberg from @NYUCVDPrevent on July 29 from 6 -7 pm ET. Register here http://ow.ly/3MZX50AFumB.
We’re celebrating Family Health & Fitness Day! 🏃♀ How does your family stay healthy? Watch our recently released video with The Mended Hearts, Inc. and @AAgarwalaMD, “Staying Healthy in the Era of COVID-19”. 📺 http://ow.ly/h82x50A62i5
Did you know that women are less likely to receive preventive care for heart disease? Talk to your healthcare provider about your risk for a heart attack, especially if you take a hormone-based contraceptive or have PCOS or other sex-specific risk factors. http://ow.ly/rnVB50zyD2T
Nurses everywhere are heroes on the frontlines of the COVID-19 response. 👩⚕ On National Nurses Month we highlight their dedication, hope & courage because nurses make a difference. 👉 Visit http://ow.ly/N0tf50zww7Y for more details. #nurseweek2020 #nursesareheroes #thankanurse
Today on #WorldHealthDay we celebrate nurses & other healthcare team members who are working on the frontlines to care for patients with #COVID-19. 🌎 For more information on what the @WHO is doing to highlight the role of the nurses visit http://ow.ly/aBUT50z29s1 #globalhealth
Happy National Doctor Day! 👨⚕ Today We honor physicians for the work they do for their patients and communities and the integral role they play on the healthcare team. ⚕️ Thank the doctors in your life today! #happydoctorsday #medicine #ThankYouDoctors
Happy National Triglycerides Day! 🩸 The Foundation of the NLA teamed up with a dozen registered dietitians to create a very-low-fat cookbook 🍔 for patients with high triglycerides. 👉 Check out the recipes online today! http://ow.ly/YTYD50yXz1Y
Today is the 3rd annual National Triglycerides Day!
🩸 Do you or someone you care for have high triglycerides? Want to learn more about what triglycerides are and how they affect your health? 👉 Visit our Triglyceride Information Center at http://LearnYourLipids.com #TGDay2020
It's Diabetes Alert Day! 💉 Did you know that 88 million Americans have prediabetes? Take the American Diabetes Association's Diabetes Risk Test to see if you are at risk for type 2: http://www.diabetes.org/risk-test #diabetesawareness #diabetesalertday #preventivemedicine
#ThankYouHealthcareProfessionals 💙 #PublicHealth #PublicHealthHeroes #COVID19
Take care of your heart during the American Heart Month! ❤️ Remember that heart disease is preventable with healthy choices, like not smoking, maintaining a healthy weight and getting at least 150 minutes of physical activity a week. 🏃♀ #hearthealth #stayhealthy
Today is National Wear Red Day! ❤️ Join us and wear red to support women’s heart health. . #WearRedDay #GoRed
A new survey from the @nationallipid aims to identify gaps in the care of patients who may have Homozygous Familial Hypercholesterolemia. Read the results published in the Journal of General Internal Medicine. #HoFH #FamilialHypercholesterolemia #InternalMedicine #RareDisease
January is National Blood Donor Month. 💉 We are grateful to all donors for making lifesaving a habit. Commit to donate in 2020! ❤️ #BloodDonorMonth #GiveBack
Today we celebrate the nation’s IV nurse professionals 👩⚕️ who dedicate their lives to providing apheresis patients with the best care. 💉 #IVNurseDay #thankyounurses
“Life's most persistent and urgent question is, 'What are you doing for others?'” -Martin Luther King, Jr. 🇺🇸 #MLKDay
Thank you to all of our supporters 💖 who enabled us to do great things in 2019! Look for a thank-you postcard from our staff and board members in your mailboxes soon.
The Foundation of the National Lipid Association sends you and your loved ones warm wishes for a bright and healthy New Year! 🌠🎉🍾 #NewYear #2020
Season’s greetings from The Foundation of the National Lipid Association! Wishing you and your loved ones a wonderful holiday season! ❄️☃️🎁 #seasonsgreetings #happyholidays
Do you or someone you love have #heartdisease, #diabetes, or #lungdisease? To learn about flu-induced complications including heart attack and stroke from the @NFIDvaccines during #NationalInfluenzaVaccinationWeek visit http://nfid.org/flu. #GetVaccinated to #FightFlu
Did you support a charitable organization this #GivingTuesday? ❤️ We want to hear about the causes that mean the most to you!
It is National Influenza Vaccination Week! 💉 Check on these resources from the @NFIDvaccines to learn how having the flu may increase your risk for a heart attack visit http://nfid.org/flu. #GetVaccinated to #FightFlu#FightFlu and to #LowerYourFluRisk
This #GivingTuesday, ❤️️ a donation to the Foundation of the NLA @LearnYourLipids, means supporting the creation and dissemination of resources for children and adults suffering with cholesterol and triglyceride disorders that put their health at high risk.
Know your risk and support the Foundation of the NLA this #GivingTuesday ❤️️
Support your patients this #GivingTuesday ❤️️
The Foundation of the National Lipid Association wishes you and yours a very Happy Thanksgiving! 🦃 #HappyThanksgiving #givethanks
What resources do you want to see from the Foundation of the NLA during #CholesterolEducationMonth?
.@learnyourlipids President and #NLA Past President Anne C. Goldberg, MD, FNLA is at #ACC19 presenting findings from the CLEAR Wisdom trial, a multicenter study to evaluate the efficacy of bempedoic acid. #NLAatACC
Susan Toomey, MS, kicks off Vinous Hearts in Portland - the #FNLA event for #SpringCLU. #NLAPortland
Give your patients a strong resource for #hearthealthy, #lowfat recipes with the @learnyourlipids #FCS Cookbook! https://bit.ly/2RSOCd3 #HeartMonth
Chronic #stress upsets the normal balance of body #hormones and chemical messengers in the #brain, causing a strain on the #heart. Read about the “5 Ps to Manage Stress” in this #NLA #patient tear sheet: https://bit.ly/2B7ioR8 #HeartMonth
Want a strong resource for #hearthealthy, #lowfat recipes? Look no further than the @learnyourlipids #FCS Cookbook! https://bit.ly/2RSOCd3 #HeartMonth
In honor of Elizabeth Blackwell, the first woman to receive a medical degree in the US, and to celebrate the tremendous accomplishments of our member female physicians, Happy National Women Physicians Day! Thank you for all you do! #NWPD #NLAWIL #WomenDocsInspire #IAmBlackwell
.@nationallipid and #FoundationoftheNLA staff wore red yesterday in support of #WearRedDay to help raise awareness for #heartattack and #stroke. How are you bringing attention to American #HeartMonth? #NLAWearsRed
Join us on National #WearRedDay, tomorrow, Feb. 1, to raise awareness about #heartdisease. Wear red and pledge to be more active to protect your #heart this #HeartMonth #MoveWithHeart #NLAWearsRed #NLAWIL
Join the #NLA this Friday, Feb. 1 as we wear red for National #WearRedDay to help raise awareness for #heartdisease and #stroke. #GoRed #GoRedforWomen #1in3 #diet #exercise #cholesterol #hypertension #wellness #nutrition #obesity #hearthealth #AmericanHeartMonth
Let's see those abstracts! We look forward to seeing submissions for the #FoundationoftheNLA's #YoungInvestigator Awards and Hunninghake #FH Abstract Award! #KnowFH http://lipid.org/abstracts
There is still time to make your year-end donation to the #FoundationoftheNLA to receive 2018 tax-deductible benefits! Your support has such a tremendous impact on our important patient education initiatives. Please consider giving today! http://learnyourlipids.com/content/donate/index.php
We are supporting a Health First Community Health Center initiative today from 4:00-6:00pm in Providence, KY. They have partnered with their local #ToysForTots program to offer health screenings to families as they pick up their gifts.
The #NLA and @LearnYourLipids released an open letter to familial #chylomicronemiasyndrome patients regarding access to therapy. Read it here: https://bit.ly/2EAnFnv @livingwithfcs #FindAWay #KeepFightingFCS #RareDisease
Lipid management resources. Lifesaving cholesterol screenings. It's the gift that keeps on giving! By supporting the Foundation of the NLA on #GivingTuesday, you're helping at-risk Americans live their best heart-healthy lives. http://ow.ly/4Gyz30mLKxv
This #GivingTuesday, support the Foundation of the NLA to help provide resources and screening events for those at risk for heart disease due to high cholesterol. http://ow.ly/soR930mKLJK
Support the #FoundationoftheNLA this #GivingTuesday and spread our message by sharing why you support us and how impactful it is on the lives of those suffering from #cholesterol and #triglyceride problems! https://bit.ly/2PGeurz
#LivingWithFCS doesn't mean patients have to miss out on the holidays. Check out these holiday themed FCS-friendly recipes! #FCSAwarenessDay
Holiday Recipes » FCS Focus
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What can I do for my FCS? Check out the helpful tips below and read more in our patient tearsheet: http://ow.ly/6mLU30mtyvw #FCSAwarenessDay #LivingWithFCS #ActionFCS
Mark your calendar for Nov. 7, when we will release our newly updated #FCSCookbook! These recipes are very helpful (and tasty) for patients. #LivingWithFCS http://learnyourlipids.com #FCSAwarenessDay #FCSAction
Although FCS is a #genetic (inherited) condition, #genetictesting is not required. #Symptoms can vary and the age at which symptoms occur may vary. An individual can often have severe symptoms before FCS is ever diagnosed. #FCSAwarenessDay #LivingWithFCS #FCSAction
When you have FCS, the enzyme that breaks down #triglycerides from the diet is absent or does not work well, causing #triglyceride levels in the blood to build up. You are unable to remove these #fats from your blood and you must avoid eating foods high in fat. #FCSAwarenessDay
Today is #FCSAwarenessDay! Be sure to follow us for important facts and tips for living with FCS throughout today! #ActionFCS #LivingWithFCS
Holiday shop AND support the #FoundationoftheNLA with @amazonsmile! Through Nov. 2, AmazonSmile will donate 5% (10x the usual rate) of the purchase price of eligible products. Go to http://ow.ly/nafD30mq461 and select Foundation of the National Lipid Association as your charity!
ICYMI! Help the #FoundationoftheNLA improve #triglyceride education by taking this short survey: http://ow.ly/uoW530mcf8D
Help the #FoundationoftheNLA improve #triglyceride education by taking this short survey: http://ow.ly/uoW530mcf8D
Approximately 1 in 500 people in the world have a genetic alteration that causes FH but 90% goes undiagnosed. #KnowFH #FHAwareness #FHCantWait
Today's #NationalCholesterolEducationMonth post comes from @nationallipid's Dr. Gregory Pokrywka. @gpokmd leads #Baltimore’s sea kayaking club on #expeditions weekly, hits the gym for 4 hrs/week doing a mixed cardio/resistance plan. An #avocado a day keeps the #heartattack away!
Today's #NationalCholesterolEducationMonth post comes from #NLAFoundation Board Member & @nationallipid Imm. Past President Dr. James Underberg (@lipiddoc). He always throws his gym clothes in his travel bag. Take advantage of meeting time and move! #fitness #hearthealth
Today's #NationalCholesterolEducationMonth post comes from #NELA President & #NLA Board Member Daniel Soffer, MD, FNLA. To stay fit, Dr. Soffer likes to play #soccer every chance he gets! #fitness #lipids #wellness
Today's #NationalCholesterolEducationMonth post comes from #NLA Exec. Committee Chair Elizabeth J. Jackson, MSN, CLS, FNLA (@LipidCNS). Weekend meal prep helps her keep to a #healthydiet during a busy week and creates family time! Read more below!
¡Eso es todo para la hora de chat #HighCholesterolMama! Gracias a todos por participar y compartir recursos.
That’s a wrap for the #HighCholesterolMama chat hour! Many thanks to all for joining in & sharing resources.
P9: ¿Dónde puedo encontrar recursos acerca de colesterol alto y embarazo? #HighCholesterolMama
Q9: Where can I find resources on high cholesterol and pregnancy? #HighCholesterolMama
P8: ¿Qué son registros de embarazo y por qué son tan importantes para mamás y futuras mamás? #HighCholesterolMama
Q8: What are pregnancy registries and why are they important for moms and moms to be? #HighCholesterolMama
P7: ¿Se puede continuar el uso de medicinas para bajar el colesterol durante embarazo y lactancia materna? #HighCholesterolMama
Q7: Can you continue taking cholesterol lowering medications during pregnancy and while breastfeeding? #HighCholesterolMama
P6: ¿Hay complicaciones de embarazo que provienen de tener colesterol alto? #HighCholesterolMama
Q6: Are there pregnancy complications that come from having high cholesterol? #HighCholesterolMama
P5: ¿Qué les sucederá a tus niveles de colesterol durante embarazo? #HighCholesterolMama
Q5: Does having high cholesterol mean that your baby has a greater risk of developing birth defects? #HighCholesterolMama
Partners
The Foundation of the NLA is proud to partner with like-minded organizations to elevate our collective work and reach more patients, caregivers, and consumers seeking education about their health and cardiovascular risk.
