The Foundation of the NLA has established RADAR (the RAre Disease AwaReness campaign) as a national patient outreach program that will provide a plethora of resources and tools for both healthcare professionals and patients about several of the rare lipid disorders including (but not limited to):

  • Familial chlyomicronemia syndrome (FCS)
  • Lysosomal acid lipase deficiency (LAL-D)
  • Lipodystrophy
  • Heterozygous familial hypercholesterolemia (HeFH)
  • Homozygous familial hypercholesterolemia (HoFH)

The resources provided for this campaign are available to help you identify the rare lipid disorders that do exist, to help you better understand treatment opportunities and options, and the need to manage your cardiovascular health. Healthcare professionals can also find resources available that will assist in communicating vital information to patients.

An integral part of this campaign is the FCS cookbook, which includes a multitude of delicious recipe options designed specifically for individuals managing FCS. The site also includes informational tear sheets and links to other valuable websites and resources of information. Please continue to check back regularly as we are growing and adding information continuously the different rare lipid disorders.


FCS-What You Need to Know

Designed for patients, this tear sheet explains what FCS is, how FCS is diagnosed and where patients can go for more information.


Living with FCS

This tear sheet provides diet and healthy eating tips for individuals living with FCS.


FH-What You Need to Know

This handy tear sheet provides an explanation for patients on what FH is all about, how it is diagnosed and how it affects the family.

Genetic Testing

Discuss the need for genetic testing with your healthcare provider. It is not necessary for most. If you have a genetic test, the result may help determine the best treatment and if any of your family members should be tested.

Familial Hypercholesterolemia

FH is the most common genetic disorder. Approximately 1 in 500 people in the world has a genetic alteration that causes FH. If one parent has FH, there is a 50% chance that their son or daughter will also have it. FH is associated with an increased risk of heart disease.

Women and FH

Includes details meant for providers to gain a better understanding of how FH affects women differently than men.

We are unable to supply Patient Tear Sheets in printed form. Tear Sheets are provided for your convenience and your patients and may be reproduced without modification digitally or in print with copyright and attribution information intact.

Familial chlyomicronemia syndrome (FCS)

Familial hypercholesterolemia (FH)

Rare Disease

Lysosomal Acid Lipase Deficiency (LAL-D)


Click the corner of the book to turn the pages. If you have issues, use the arrow keys to turn the pages.